Parents' understanding of genetic risk data in genetic counseling [letter].

Relatively little has been published on the parents' ability to grasp the 
importance of empirical risk data and Mendelian-type probabilities. The basic problem 
is that for many reasons, consumers do not know what the 
recurrent risks are for the various genetic diseases, not only cystic 
fibrosis. As is so often the problem in health care, the 
most effective means to communicate health care information is not used 
or even known. Until the problem of communication of probability can 
be worked out, I would like to make some suggestions in 
trying to help those who are provided with probability data. Always 
record probability values discussed in the genetic counseling session. If dealing 
with a family physician, the information should become a part of 
the medical history for future reference. When providing documentation of probabilities, 
always include the interpretation of such probabilities through diagrams, charts, and 
other simple means. Use available pamphlets and brochures provided by various 
organizations such as foundations and departments of health. 