Cystic fibrosis: a family challenge.

To learn how families cope with cystic fibrosis, we interviewed 18 families 
who gave us vivid descriptions of the day-to-day process of living 
with this devastating disease. The families and the disease are described. 
Pre-diagnosis and diagnosis, home management and treatment, family communication about CF, 
the reactions of siblings, relationships with peers, hospitalization, and sources of 
support are discussed. 